Susan and Charles Berghoff Foundation
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    • Home
    • About LBD
    • Research
    • Programs
    • Events
    • About Us
      • Mission
      • Leadership
      • Our Partners
    • Media
      • News
      • Blog
      • Podcasts
    • Ways to Give
    • Contact
Susan and Charles Berghoff Foundation
  • Home
  • About LBD
  • Research
  • Programs
  • Events
  • About Us
    • Mission
    • Leadership
    • Our Partners
  • Media
    • News
    • Blog
    • Podcasts
  • Ways to Give
  • Contact

EVENTS

Our events are designed to increase understanding of dementia, brain health, and dementia risk reduction.  We collaborate with medical research, healthcare, social services and academic partners to support Continuing Education (CME/CE) requirements of health systems and student learning objectives of colleges and universities. Our community workshops focus on the family. Educational content includes a special focus on Lewy body disease and related dementias.

Our Programs

compassionate communities

What's New in the Village: The Emerging Practice of Neuropalliative Care

June 3, 2025

National Symposium for Palliative Care Education & Research 

Shiley Hayes Institute of Palliative Care

CSU - San Marcos


An informative, thought-provoking conversation with Dr. Jocelyn Jiao, a Stanford Neurologist and Neuropalliative Care Specialist. Dr. Jiao will share about the emerging field of neuropalliative care, and how it will address the unmet need for better quality of life for people living with dementia and their family caregivers. Interview by Robin Shepherd, Co-founder and Executive Director, Susan & Charles Berghoff Foundation.


Register for the conference: https://csupalliativecare.org/symposium/


educating future nurses

Foothill DeAnza College of Nursing

April 8, 2025

Foothill-DeAnza Community College

School of Nursing


The Susan and Charles Berghoff Foundation will be on hand at the Community College's All-Student Seminar to screen our film, "Sue's Story: A Journey with Lewy Body Dementia," and engage in a Q&A with nursing school faculty and students.

DEMENTIA EDUCATION FOR NURSING STUDENTS

Dementia & Palliative Care: The Nurse's Role

March 12, 2025

San Jose State University

Valley Foundation School of Nursing

Spring 2025 Seminar


An interactive learning session on Lewy body dementia, the second most common neurodegenerative dementia, and the nurse's role in palliative care for LBD patients and their families. Hosted by SJSU and the Susan & Charles Berghoff Foundation.


Speakers:

Dr. Jocelyn Jiao, MDS, Neuropalliative Care Specialist, Stanford Medicine

Rev. Margaret Gelini, M.Div, BCC, Palliative Care Chaplain

Nancy Dudley, PhD, Professor, SJSU The Valley Foundation School of Nursing

Continuing medical education

Lewy Body Dementias & Palliative Care

November 20, 2024

CSU- San Marcos

Shiley Haynes Institute for Palliative Care


A Continuing Medical Education webinar presentation to advance knowledge of the Lewy body dementias and the benefits of palliative care for patients and family caregivers. Hosted by CSU-San Marcos and the Susan & Charles Berghoff Foundation.


Speakers:

Dr. Kathleen Poston, MD, MS, Stanford Medicine

Dr. Jocelyn Jiao, MD, Stanford Medicine

regional wellness fair

St Louise Regional Hospital

October 12th  |  10:00AM-2:00PM

St Louise Regional Hospital

 9400 No Name Uno, Gilroy, CA 95020 


The Susan & Charles Berghoff Foundation joins other organizations hosting exhibits that provide health and wellness information, resources and activities to South Santa Clara County residents. Our focus is brain health, dementia prevention and dementia caregiving. This free community event will take place outdoors on the hospital grounds.

dementia education for college nursing students

Learning about LBD and QoL Measures

San Jose State University

Valley Foundation School of Nursing

Fall 2024 Seminar


Dr. Elena Call, MDS, The Permanente Group

Rev Margaret Gelini, Palliative Care Chaplain



community workshop

The Remarkable Journey of Sue Berghoff

Wednesday, September 18th

2:30-4:00 pm


Film screening & discussion


Community and Cultural Center

17000 Monterey Rd, Morgan Hill

Free Admission


In this award-winning documentary, Sue Berghoff transforms a devastating diagnosis into something positive, becoming a champion of dementia research, education, and caregiver support for people living with Lewy body dementia until a cure is found.


Meet the Berghoff team and learn about their current initiatives.

CONTINUING EDUCATION FOR HEALTHCARE PROFESSIONALS

What is Lewy Body Dementia?

May 15, 2024  |  10:00-11:30AM

UC Davis Health - Annual Neuroscience Symposium

Center for Professional Practice of Nursing

UC Davis MIND Institute


A Continuing Education presentation on the Lewy Body Dementias

Dr. Miguel Ruvalcaba, MDS, The Permanente Medical Group

Chuck Berghoff, Chairman, Susan & Charles Berghoff Foundation


HEALTHY BRAIN, HEALTHY AGING LECTURE SERIES

LBD Awareness and Advances

The Susan and Charles Berghoff Foundation is a proud sponsor of

"Lewy Body Dementia Awareness & Advances"


May 2nd, 2024 - 6:00-7:30PM


Special Film Screening

Sue's Story: A Journey with Lewy Body Dementia

(award-winning documentary)


Guest Speakers

Angela Taylor, Vice President-Strategic Partnerships, LBDA

Chuck Berghoff, Chairman, Susan and Charles Berghoff Foundation


UC DAVIS 

2570 48th Street

1000 Betty Irene Moore Hall

Sacramento


REGISTER NOW. FREE ADMISSION. SEATING IS LIMITED.

Brain health, dementia prevention and dementia care

April 10, 17 and 24, 2024, 6:00-8:00 PM

Free bi-lingual community workshops provide information and resources focused on brain health, dementia prevention, advance care planning and dementia caregiving.

This series is made possible by grants from Kaiser Permanente and the Rotary Club of Morgan Hill. If your organization would like to host a similar series, info@berghoff-foundation.org.

DEMENTIA EDUCATION FOR FUTURE NURSES

Dementia, Lewy Body Dementias & the Nurse's Role in Care

March 6, 2024 - 3:00-5:00 PM

Webinar hosted by SJSU/Valley Foundation School of Nursing


Guest Speakers

Dr. Elena Call, The Permanente Medical Group

Chuck Berghoff, Chairman

Robin Shepherd, Executive Director

Rev Larry Wildemuth, Valley Medical Center


Lewy body disease and related dementias, palliative care support, caregiver perspectives.

Film screening, presentations and Q&A for SJSU nursing students and nurse professionals


Supported by a grant from: 

Santa Clara County Public Health


National Symposium - palliative care education

Palliative Care and the Lewy Body Dementias

February 8, 2024, 1:30-3:30 PM

Workshop Presentation

National Symposium for Academic Palliative Care Education and Research


"Palliative Care and the Lewy Body Dementias: Educating the Next Generation of Nurses"

Dr. Jocelyn Jiao, MD, MS, Neurologist, Clinical Asst Professor, Stanford

Chuck Berghoff, Chair, Susan and Charles Berghoff Foundation

Robin Shepherd, Executive Director, Susan and Charles Berghoff Foundation

https://csupalliativecare.org/symposium/

film screening and discussion

AARP Hosts the Susan & Charles Berghoff Foundation

"Sue's Story: A Journey with Lewy Body Dementia"

Film screening and discussion


Thursday, December 14th 2023


AARP's San Jose Regional Director, Sophie Horiuchi-Forrester, invited Chuck Berghoff and Robin Shepherd, co-founders of the Susan & Charles Berghoff Foundation, to shed light on Lewy body dementia (LBD), the second most common neurodegenerative dementia. An informative look at cause, risk factors, common symptoms, challenges of diagnosis, perspectives shared by a couple living with LBD, and reasons for hope. 

To inquire about film screening events for groups, email info@berghoff-foundation.org

Dementia, Lewy Body Dementia, and the Nurse's Role in Care

September 20th, 2023

Continuing Education presentation for Santa Clara County Public Health Nurses, with special guest Dr. Elena Call, MDS, The Kaiser Permanente Medical Group.

Produced by the Susan and Charles Berghoff Foundation in partnership with the Santa Clara County Public Health Department.

Continuing Medical Education (CME) with El Camino Health

August 9th, 2022 | 12:30 pm – 1:30 pm El Camino Health System

El Camino Health System presents a Continuing Medical Education (CME) course on Lewy body dementia for healthcare professionals. Special guest Dr. Carla Abdelnour, Dept. of Neurology & Neurological Sciences, Stanford University. Dr. Abdelnour is a Sue Berghoff LBD Research Fellow at Stanford. Her focus is Lewy body disease research. Hosted by El Camino Hospital, planned with Stanford and the Susan and Charles Berghoff Foundation.

Continuing Medical Education (CME) with SCVMC

June 9th, 2022 - Santa Clara Valley Medical Center

The Susan and Charles Berghoff Foundation and the Santa Clara Valley Medical Center present a Continuing Medical Education (CME/CE) course on Lewy body dementia for healthcare, social services and public health professionals. Produced by the Susan and Charles Berghoff Foundation with special guest Dr. Kathleen Poston, Dept. of Neurology & Neurological Sciences at Stanford. Hosted by Dr. Clifford Wang, CMO, Santa Clara Valley Medical Center and the MJ Chatton Medical Library. 

Dementia Education seminar with SJSU

March 25th 2022

Students of The Valley Foundation School of Nursing at SJSU learn from healthcare experts about the causes, risk factors and symptoms of dementia with a focus on Lewy body dementia. Presentations and Q&A explore the critical role of nurses in the coordination of care. Moderated by Robin Shepherd, Executive Director/Susan and Charles Berghoff Foundation. Special guests: Dr. Jennifer Cohen, Palliative Care Specialist at Kaiser Permanente, and Courtney Jaffe, RN, with Stanford Health. SJSU Faculty members hosting the seminar include Drs. Nancy Dudley, Daryl Canham and Stefan Frazier.

Support Dementia Education

Dementia education leads to understanding, informed action and better health outcomes for patients and their families. This is the path to progress in overcoming dementia, one of the greatest public health challenges of our time.

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