special event
SAVE the DATE - Tribute and Celebration
PIZZA in PARADISE 2.0
September 27th 2025
4:00 - 8:00 pm
Guglielmo Winery, Morgan Hill
We will honor the memory of our co-founder Sue Berghoff and celebrate our progress, inspired by Sue's vision of a world free of dementia. Event to include welcome reception, speaker program, dinner and entertainment. Advance registration required. Details to follow.
compassionate communities
What's New in the Village: The Emerging Practice of Neuropalliative Care
June 3, 2025
National Symposium for Palliative Care Education & Research
Shiley Hayes Institute of Palliative Care
CSU - San Marcos
An informative, thought-provoking conversation with Dr. Jocelyn Jiao, a Stanford Neurologist and Neuropalliative Care Specialist. Dr. Jiao will share about the emerging field of neuropalliative care, and how it will address the unmet need for better quality of life for people living with dementia and their family caregivers. Interview by Robin Shepherd, Co-founder and Executive Director, Susan & Charles Berghoff Foundation.
Register for the conference: https://csupalliativecare.org/symposium/
BRAIN Health & DEMENTIA PREVENTION
BRAIN HEALTH SYMPOSIUM
Chronic Disease & Brain Health
Santa Clara County DPH, Stanford ADRC
May 23rd, 2025 | 10:00 - 12:00 AM
Webinar
Guest speakers:
Robin Shepherd, Executive Director
Susan and Charles Berghoff Foundation
Dr. Carl Abdelnour, MD, Stanford
Dr. Joe Winer, PhD, Stanford
Patricia Espinoza, PhD, MPH, Stanford
Brain health, dementia prevention, diagnosis, treatment and caregiving information and resources. Geared for healthcare professionals, community health workers, policymakers, community-based organizations and caregivers.
educating future nurses
Foothill DeAnza College of Nursing
April 8, 2025
Foothill-DeAnza Community College
School of Nursing
The Susan and Charles Berghoff Foundation will be on hand at the Community College's All-Student Seminar to screen our film, "Sue's Story: A Journey with Lewy Body Dementia," and engage in a Q&A with nursing school faculty and students.
DEMENTIA EDUCATION FOR NURSING STUDENTS
Dementia & Palliative Care: The Nurse's Role
March 12, 2025
San Jose State University
Valley Foundation School of Nursing
Spring 2025 Seminar
An interactive learning session on Lewy body dementia, the second most common neurodegenerative dementia, and the nurse's role in palliative care for LBD patients and their families. Hosted by SJSU and the Susan & Charles Berghoff Foundation.
Speakers:
Dr. Jocelyn Jiao, MDS, Neuropalliative Care Specialist, Stanford Medicine
Rev. Margaret Gelini, M.Div, BCC, Palliative Care Chaplain
Nancy Dudley, PhD, Professor, SJSU The Valley Foundation School of Nursing
Continuing medical education
Lewy Body Dementias & Palliative Care
November 20, 2024
CSU- San Marcos
Shiley Haynes Institute for Palliative Care
A Continuing Medical Education webinar presentation to advance knowledge of the Lewy body dementias and the benefits of palliative care for patients and family caregivers. Hosted by CSU-San Marcos and the Susan & Charles Berghoff Foundation.
Speakers:
Dr. Kathleen Poston, MD, MS, Stanford Medicine
Dr. Jocelyn Jiao, MD, Stanford Medicine
dementia education for college nursing students
Learning about LBD and QoL Measures
San Jose State University
Valley Foundation School of Nursing
Fall 2024 Seminar
Dr. Elena Call, MDS, The Permanente Group
Rev Margaret Gelini, Palliative Care Chaplain
community workshop
The Remarkable Journey of Sue Berghoff
Wednesday, September 18th
2:30-4:00 pm
Film screening & discussion
Community and Cultural Center
17000 Monterey Rd, Morgan Hill
Free Admission
In this award-winning documentary, Sue Berghoff transforms a devastating diagnosis into something positive, becoming a champion of dementia research, education, and caregiver support for people living with Lewy body dementia until a cure is found.
Meet the Berghoff team and learn about their current initiatives.
CONTINUING EDUCATION FOR HEALTHCARE PROFESSIONALS
What is Lewy Body Dementia?
UC Davis Health - Annual Neuroscience Symposium
Center for Professional Practice of Nursing
UC Davis MIND Institute
May 15, 2024 | 10:00-11:30AM
A Continuing Education presentation on the Lewy Body Dementias
Dr. Miguel Ruvalcaba, MDS, The Permanente Medical Group
Chuck Berghoff, Chairman, Susan & Charles Berghoff Foundation
HEALTHY BRAIN, HEALTHY AGING LECTURE SERIES
UC DAVIS HEALTH - GUEST LECTURE
The Susan and Charles Berghoff Foundation is a proud sponsor of
"Lewy Body Dementia Awareness & Advances"
May 2nd, 2024 - 6:00-7:30PM
Special Film Screening
Sue's Story: A Journey with Lewy Body Dementia
(award-winning documentary)
Guest Speakers
Angela Taylor, Vice President-Strategic Partnerships, LBDA
Chuck Berghoff, Chairman, Susan and Charles Berghoff Foundation
UC DAVIS
2570 48th Street
1000 Betty Irene Moore Hall
Sacramento
REGISTER NOW. FREE ADMISSION. SEATING IS LIMITED.
Brain health, dementia prevention and dementia care
April 10, 17 and 24, 2024, 6:00-8:00 PM
Free bi-lingual community workshops provide information and resources focused on brain health, dementia prevention, advance care planning and dementia caregiving.
This series is made possible by grants from Kaiser Permanente and the Rotary Club of Morgan Hill. If your organization would like to host a similar series, info@berghoff-foundation.org.
DEMENTIA EDUCATION FOR FUTURE NURSES
Dementia, Lewy Body Dementias & the Nurse's Role in Care
March 6, 2024 - 3:00-5:00 PM
Webinar hosted by SJSU/Valley Foundation School of Nursing
Guest Speakers
Dr. Elena Call, The Permanente Medical Group
Chuck Berghoff, Chairman
Robin Shepherd, Executive Director
Rev Larry Wildemuth, Valley Medical Center
Lewy body disease and related dementias, palliative care support, caregiver perspectives.
Film screening, presentations and Q&A for SJSU nursing students and nurse professionals
Supported by a grant from:
Santa Clara County Public Health
National Symposium - palliative care education
Palliative Care and the Lewy Body Dementias
February 8, 2024, 1:30-3:30 PM
Workshop Presentation
National Symposium for Academic Palliative Care Education and Research
"Palliative Care and the Lewy Body Dementias: Educating the Next Generation of Nurses"
Dr. Jocelyn Jiao, MD, MS, Neurologist, Clinical Asst Professor, Stanford
Chuck Berghoff, Chair, Susan and Charles Berghoff Foundation
Robin Shepherd, Executive Director, Susan and Charles Berghoff Foundation
film screening and discussion
AARP Hosts the Susan & Charles Berghoff Foundation
"Sue's Story: A Journey with Lewy Body Dementia"
Film screening and discussion
Thursday, December 14th 2023
AARP's San Jose Regional Director, Sophie Horiuchi-Forrester, invited Chuck Berghoff and Robin Shepherd, co-founders of the Susan & Charles Berghoff Foundation, to shed light on Lewy body dementia (LBD), the second most common neurodegenerative dementia. An informative look at cause, risk factors, common symptoms, challenges of diagnosis, perspectives shared by a couple living with LBD, and reasons for hope.
To inquire about film screening events for groups, email info@berghoff-foundation.org
Dementia, Lewy Body Dementia, and the Nurse's Role in Care
September 20th, 2023
Continuing Education presentation for Santa Clara County Public Health Nurses, with special guest Dr. Elena Call, MDS, The Kaiser Permanente Medical Group.
Produced by the Susan and Charles Berghoff Foundation in partnership with the Santa Clara County Public Health Department.
Continuing Medical Education (CME) with El Camino Health
August 9th, 2022 | 12:30 pm – 1:30 pm El Camino Health System
El Camino Health System presents a Continuing Medical Education (CME) course on Lewy body dementia for healthcare professionals. Special guest Dr. Carla Abdelnour, Dept. of Neurology & Neurological Sciences, Stanford University. Dr. Abdelnour is a Sue Berghoff LBD Research Fellow at Stanford. Her focus is Lewy body disease research. Hosted by El Camino Hospital, planned with Stanford and the Susan and Charles Berghoff Foundation.
Continuing Medical Education (CME) with SCVMC
June 9th, 2022 - Santa Clara Valley Medical Center
The Susan and Charles Berghoff Foundation and the Santa Clara Valley Medical Center present a Continuing Medical Education (CME/CE) course on Lewy body dementia for healthcare, social services and public health professionals. Produced by the Susan and Charles Berghoff Foundation with special guest Dr. Kathleen Poston, Dept. of Neurology & Neurological Sciences at Stanford. Hosted by Dr. Clifford Wang, CMO, Santa Clara Valley Medical Center and the MJ Chatton Medical Library.
