Lewy body disease (LBD) is the second most prevalent cause of progressive dementia after Alzheimer's disease. LBD is associated with dementia with Lewy bodies (DLB) and Parkinson's disease dementia (PDD). Despite all this, LBD has been "hidden in plain sight" for decades. We are here to increase education, caregiving resources and research until a cure is found and LBD is a thing of the past.
“When I found out that I had Lewy Body Dementia, I decided to make something positive from my diagnosis by sharing my story. We need to shed light on dementia and remove its stigma. We’re not doing enough. Research is desperately needed if we’re going to find a cure.”
Sue Berghoff, co-founder
The Sue Berghoff LBD Research Fellowship funds postdoctoral researchers at Stanford Neurology & Neurosciences. Their work is focused on identifying novel markers of Lewy body dementia. This area of research is critical in the development and testing of therapies and a cure. Stanford’s collaborative approach—integrating clinical, behavioral and translational research—is reason for hope for families living with LBD.
Our documentary takes viewers on a journey with our co-founder, Sue Berghoff, whose life-changing diagnosis fueled her efforts to shine a spotlight on Lewy body dementia. Medical experts from Stanford and Kaiser Permanente join Sue to provide a clear and helpful perspective on LBD.