Lewy body disease (LBD) is the second leading progressive dementia after Alzheimer's disease. LBD is associated with dementia with Lewy bodies (DLB) and Parkinson's disease dementia (PDD). We are here to increase education, caregiving resources and research until a cure is found and LBD is a thing of the past.
“When I found out that I had Lewy Body Dementia, I decided to make something positive from my diagnosis by sharing my story. We need to shed light on dementia and remove its stigma. We’re not doing enough. Research is desperately needed if we’re going to find a cure.”
Sue Berghoff, co-founder
The Sue Berghoff LBD Research Fellowship funds postdoctoral researchers at Stanford Neurology & Neurosciences. Their work is focused on identifying novel markers of Lewy body dementia. This area of research is critical in the development and testing of therapies and a cure. Stanford’s collaborative approach—integrating clinical, behavioral and translational research—is reason for hope for families living with LBD.
When our co-founder Sue Berghoff was diagnosed with Lewy body dementia, she shared her story on camera, joined by medical experts from Stanford and Kaiser Permanente. The resulting documentary, Sue's Story: A Journey with Lewy Body Dementia, provides a clear and helpful perspective on LBD for the benefit of doctors, nurses, caregivers and communities everywhere. Request a film screening for your event.