Susan and Charles Berghoff Foundation
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    • Home
    • About LBD
    • Research
    • Programs
    • Events
    • About Us
      • Mission
      • Leadership
      • Our Partners
    • Media
      • News
      • Blog
      • Podcasts
    • Ways to Give
    • Contact
Susan and Charles Berghoff Foundation
  • Home
  • About LBD
  • Research
  • Programs
  • Events
  • About Us
    • Mission
    • Leadership
    • Our Partners
  • Media
    • News
    • Blog
    • Podcasts
  • Ways to Give
  • Contact

Our work is made possible by grants and donations. Join us to defeat LBD

DONATE

Why We Exist

Lewy body disease (LBD) is the second leading progressive dementia after Alzheimer's disease. LBD is associated with dementia with Lewy bodies (DLB) and Parkinson's disease dementia (PDD).  We are here to increase education, caregiving resources and research until a cure is found and LBD is a thing of the past.

Our Inspiration

“When I found out that I had Lewy Body Dementia, I decided to make something positive from my diagnosis by sharing my story. We need to shed light on dementia and remove its stigma. We’re not doing enough. Research is desperately needed if we’re going to find a cure.” 

Sue Berghoff, co-founder 


IMPACT THROUGH RESEARCH

THE SUE BERGHOFF LBD RESEARCH FELLOWSHIP

The Sue Berghoff LBD Research Fellowship funds postdoctoral researchers at Stanford Neurology & Neurosciences.  Their work is focused on identifying novel markers of Lewy body disease and related dementias. This area of research is critical in the development and testing of therapies and a cure. Stanford’s collaborative approach—integrating clinical, behavioral and translational research—is reason for hope for families living with LBD. 


LEarn more

IMPACT THROUGH EDUCATION

CME/CE training for doctors and nurses

Dementia education for college students

Dementia education for college students

Dementia education for college students

Dementia education for college students

Dementia education for college students

Funding for focused medical research

Funding for focused medical research

Funding for focused medical research

Resources for dementia caregivers

Funding for focused medical research

Funding for focused medical research

IMPACT THROUGH COMMUNITY

When our co-founder Sue Berghoff was diagnosed with Lewy body dementia, she shared her story on camera, joined by medical experts from Stanford and Kaiser Permanente. The resulting documentary film, Sue's Story: A Journey with Lewy Body Dementia, provides a clear and helpful perspective on LBD for the benefit of doctors, nurses, caregivers and communities everywhere.     WATCH THE MOVIE TRAILER


ALL THINGS DEMENTIA (BLOG)

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